Chris Evans 6 | 07/11/2021 10:11:35 |
![]() 2156 forum posts | Has anyone been diagnosed as having Parkinsons Disease ? If so how did it impact day to day in the workshop ? I realise severity will differ from each individual but do not want to rush into disposing of the machinery if I have years to do so. Edited By Chris Evans 6 on 07/11/2021 10:12:46 |
Michael Gilligan | 07/11/2021 10:42:36 |
![]() 23121 forum posts 1360 photos | Hello, Chris I’m sorry it doesn’t answer your question directly, but I think this might be relevant: I recently contacted a highly respected friend for an opinion on an optical matter: His reply saddened me greatly, and brought home the harsh reality of life: “Partly because of Parkinsons, I fear I can’t help with your […] query - I feel I don't think as clearly as I once did, and any contribution would be difficult.” I have met with him since, and this great man is a shadow of his former self; both physically and in terms of ‘attention’ … There is still a great mind inside that feeble body, I hasten to add ! MichaelG. |
Brian Wood | 07/11/2021 10:43:53 |
2742 forum posts 39 photos | Hello Chris, I'm sorry to hear you are facing this unhappy news. Progress can I believe now be delayed, but not stopped, and your mind is not affected as in the dementia situation, which is a blessing, but it is debilitating and progressively steals fine motor control of body movements. I should read the NHS website information for more detail, better and more factual than many of the others. You might be fortunate in having an early diagnosis so that treatment can begin and I imagine you have a fair time ahead in which to come to terms with the condition and plan accordingly I wouldn't rush into any sales at this stage and certainly not until you really have to Best wishes for the future Brian
Edited By Brian Wood on 07/11/2021 10:46:16 |
Gordon Tarling | 07/11/2021 10:52:29 |
185 forum posts 4 photos | I was diagnosed with Parkinsons about 3 years ago, though I'm sure I had symptoms before that. At the moment. mine's not too bad and doesn't really physically stop me from doing anything. I am finding that my dexterity is waning somewhat and certain tasks are a bit tricky when the shaking is bad, but I do manage to get most things done that I want to. What I am finding though, is that the actual will to do things is declining more than I would like - some days I find I just can't summon up the enthusiasm to do stuff and I also find that tasks which take more mental 'computing power' sometimes just defeat me totally. However, as you say, everyone is different, so I think you just have to accept things as they come. Being on the right medication for you can also help greatly, so try to be frank and honest about your feelings with whichever doctor is caring for you. I do hope you've been told that they can't stop the shaking, though I have found that mine has improved a fair bit with a stronger dose of medication. Feel free to ask any more questions that you may have. Gordon |
SteveW | 07/11/2021 13:03:00 |
![]() 140 forum posts 11 photos | Not from personal experience but I do have two friends who do have Parkinsons. My observation is that this disease progresses at different speeds in individuals. In both cases they still enjoy being able to take part in practical pastimes, talking to like minded enthusiasts and sharing their considerable skills. For one welding is no longer a possibility but teaching others is. Another observation is that expert medical advice is key. So I would say keep going as long as you feel comfortable possibly downsizing equipment if that makes sense. |
Ady1 | 07/11/2021 13:16:06 |
![]() 6137 forum posts 893 photos | Some people trundle along for years and cope ok others have a terrible time with it It's all in the hands of the gods (Darwinism), old age is not for the faint hearted My old boy is due to have his ear chopped off sometime soon, skin cancer |
Chris Evans 6 | 07/11/2021 16:37:33 |
![]() 2156 forum posts | Many thanks for all the replies, I am awaiting official confirmation but my Daughter (a GP) is convinced as I tick a lot of symptom boxes. Gordon, I noticed a downturn in mental agility over a year ago finding myself using a calculator more and more instead of mental maths. I put this down to a stroke at the time but now not so sure. I will start the medication and see how I get on. The thoughts of not being in the workshop making things and spannering the bikes fill me with dread. Chris. |
Phill Spowart | 07/11/2021 20:31:31 |
28 forum posts 2 photos | Really sorry to read this. I knew a chap when I was a teenager, volunteering at a local narrow gauge line. He'd not long been diagnosed with parkinsons when I first started volunteering. Apparently he was one of the first on some kind of wonder drug for it, and he went about another 5 or 6 years still able to drive, volunteer and be quite active, then another couple of years with his model railway at home. He was a lovely bloke. I wish you the best. |
Lee Rogers | 08/11/2021 08:33:25 |
![]() 203 forum posts | Chris ,I'm sure it hasn't escaped your notice but the common thread here is that Parkinsons will take a variety of courses in different people. Diagnosis is vital since there are many other neuro conditions that may initially present as Parkinsons, so good to know that you are in good hands on that score. All the best to you and keep going with the spanners.
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Gordon Tarling | 08/11/2021 13:20:33 |
185 forum posts 4 photos | Chris - if you haven't already, then get a referral to the neurology department of your preferred hospital, where they have the experience to treat you properly. I started on a fairly low dose of medication, but my consultant has gradually increased the frequency of the doses and this seems to have helped quite a bit. Parkinson's UK have lots of help and information on their website and can also put you in touch with local groups for further help. Gordon |
Chris Evans 6 | 08/11/2021 16:53:02 |
![]() 2156 forum posts | Posted by Gordon Tarling on 08/11/2021 13:20:33:
Chris - if you haven't already, then get a referral to the neurology department of your preferred hospital, where they have the experience to treat you properly. I started on a fairly low dose of medication, but my consultant has gradually increased the frequency of the doses and this seems to have helped quite a bit. Parkinson's UK have lots of help and information on their website and can also put you in touch with local groups for further help. Gordon Gordon, many thanks for the advise. I will look at Parkinson's UK and take the consultants advise . Chris |
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